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My neurologist suggest starting one of these. I was diagnosed 2 months ago with PPMS. I’m walking blindly into all of this right now. I’m grateful for this community of people who understand this crazy disease
I went to ClinicalTrials.gov and found a few myself. If I had to wait on my neurologist it would be months possibly years before I got into a trial lol.
I have not participated in clinical trials. My Neurologist knows that I'm willing to.
Thank you! That gives me some hope. My neurologist says my symptoms or “issues” that helped diagnose me are probably permanent- so the good news you just shared with me is uplifting! Thank you! Have you been involved with any trials? I’ve had a call from Mayo Clinic and an email from another trial. I have PPMS with overlapping MCTD. I’m hoping my rheumatologist approves Ocrevus.
I have PPMS. I was diagnosed 4 years ago and began treatment within a couple of months of diagnosis. I've had 2 different neurologiss ( due to moving). Both have told me Ocrevus is the only option for PPMS. I have been doing the infusions all 4 years. No reactions/side effects. MRI's have shown no changes in 4 years (since initially being diagnosed). It's doing what it's supposed to!
Ocrevus (ocrelizumab) is currently the only FDA-approved medication specifically for treating PPMS. It works by targeting B cells in the immune system that contribute to MS progression. Clinical trials have shown promising results - Ocrevus can significantly slow disability progression in people with PPMS and may delay the Show Full Answer
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