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I was diagnosed in 2022, I have lost a lot of my snes of smell( I can smell if it is really strong sent) and a lot of my sense of taste anyone else have this issue?

April 22, 2025
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A MyMSTeam Member

I have lost around 85% of my sense of taste. I used to eat from memory. I recently stopped eating flesh. I am 290 days without consuming meat. It has been different. The veggies taste a lot better now.

April 22, 2025
A MyMSTeam Member

I lost my smell in 2000. Not due to MS, but covid. Still haven’t gotten it back. :-/ some times that’s how I feel about it, other’s I’m glad I couldn’t smell anything!!

April 22, 2025
A MyMSTeam Member

I have not but my wife has, and appears to be an age thing and not MS. I have smelled gas in the house and laundry room and had a contractor over and she smelled it and got it fixed. Should sve on the gas bill!!

April 22, 2025
MyMSTeam

Yes, this is a common experience with MS - about 25% of people with MS experience changes or loss in their sense of taste, and many also experience a reduced ability to smell. One MyMSTeam member shared that their coffee suddenly tasted like pesto, while another noted that everything started tasting the same.

Research has Show Full Answer

Yes, this is a common experience with MS - about 25% of people with MS experience changes or loss in their sense of taste, and many also experience a reduced ability to smell. One MyMSTeam member shared that their coffee suddenly tasted like pesto, while another noted that everything started tasting the same.

Research has shown that these taste changes may be related to MS brain lesions. In fact, studies have found that people with MS can have difficulty identifying different tastes, with salty and sweet flavors being particularly challenging to detect. There are some helpful strategies you can try to enhance your tasting abilities:
- Explore foods with different textures and strong spices
- Take time to smell your food before eating
- Chew slowly and move food around different parts of your tongue
- Consult with your doctor or a registered dietitian for menu planning tips

If you notice sudden changes in taste or smell, it's important to discuss this with your healthcare provider as it could signal an MS flare. This is especially important if you're experiencing unintended weight loss or loss of appetite.

April 22, 2025

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