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Every time it has gotten extremely hot this summer I have had episodes of seizure like activity. I feel very off that day and then I end up
Having a seizure. When it cools off they seem to go away. Right now our central AC is out so it’s just a tiny window unit and a small fan in my room. We have had Heat Indexes >105° with humidity in the 80’s- 90’s and I’ve had 4 seizures in 5 days. When it was in the low 80’s I didn’t have any seizures. 🤷🏻♀️ Does anyone have this happen or am I just crazy?
You aren’t crazy It has happened to me when I fainted while being in the heat and I was told that I had a seizure, apparently this happens . During the heat if you are out and about I suggest to have a cool wet cloth around your neck it has helped me during hot summer nights cause of having no AC just a fan . It refreshes you and aids with our intolerance to heat. Sending hugs and blessings 🌹
Heat sensitivity in MS is a serious concern that can significantly impact symptoms. When core body temperature rises, even slightly, it can cause nerve signals to slow down or become blocked entirely due to the demyelination process. This interference with neural conduction can cause various neurological symptoms to worsen.
Show Full AnswerEven if no one else experiences it, it sounds like you ARE experiencing it. And are in a situation where it could happen more.
If you can’t afford cooling products, get some towels and wet them. Store them in the freezer. Get a dish pan or foot bath situation. Fill with cold water and ice. Put feet in cold. Place cold towel on neck. That creates like a cooling circuit for your body.
Even just the cooling towel around the neck/shoulders should help significantly.
Full on seizure? Or just muscle spasms? The heat can cause pseudo flares. Get you a free ice vest it can be very trying https://mymsaa.org/msaa-help/cooling-products/
ChrisC74, sorry this is happening to you, I have episodes where I can't move for a while, than all of a sudden my body comes back to normal. I used to do home care, I stopped how can I take care of someone, than might go and have an episode,they have to take care of me. I recently, got accepted for SSI it took 7 years.
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