Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
All Resources Treatments A-Z Personal Assistant Help Center Crisis
Powered By
Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Do others ever feel so alone and misunderstood because of the limitations from MS?

A MyMSTeam Member asked a question 💭
New Brockton, AL

By 1pm in the afternoon I have really bad MS fatigue. I also have quite a bit of pain, and am unable to go to church quite often. I dont drive anymore because of a loss of peripheral vision. I dont usually let what others think, but sometimes I feel so misunderstood. It's hard to make new friends, and so I stay to myself. My MSer friends are so valuable to me because you all usually understand. I like to be alone. But its hard to plan holidays or outings, because of my MS.

August 11, 2025
 · 
Reactions

Answer Summary

Members deeply connected over the question of feeling alone and misunderstood due to MS limitations, with an overwhelming number sharing that... Read more

Members deeply connected over the question of feeling alone and misunderstood due to MS limitations, with an overwhelming number sharing that fatigue, pain, and lost independence have made it nearly impossible to maintain friendships or attend family events. Several members described the exhausting cycle of having to repeatedly explain their limits, only to feel dismissed, while others found comfort in small circles of trusted people, faith, pets, and online MS communities that truly understand. A recurring theme was that this group itself serves as a lifeline, offering the empathy and acceptance that many members rarely find elsewhere in their lives.

A MyMSTeam Member

I can’t read books anymore, so I’ve gone to books on tape and audible. Works well and I’m very grateful for modern technology.

December 25, 2025
A MyMSTeam Member

Hello BrendaStinnett I'm so sorry
There is nothing easy about Ms
But I'm your Friend any time you need to vent it's OK
We all have to. There is nothing wrong with crying calling out loud to God tell him how it is
I do this And he helps me
He understands with great empathy an dx love for is daughter. Prayer for you across the ocean. Loves and blessings 🙌 💖 💛 💕

August 17, 2025
A MyMSTeam Member

I third that, Brenda and Laurie-it took me into my 30s to finally find some people whom I call truly call a friend. Now that I reached out onto here, I have at least 5 more and you two are 2 of them!

August 14, 2025
A MyMSTeam Member

There's a lot of lonely MS afflicted people, Cynthia-my neighbor doesn't go out anymore. Make friends on here but be wary of some persons b/c there's some fakes out there. Know what you want and need, then try to find some people out there.

July 30
A MyMSTeam Member

Brenda - I know what you mean. I miss life

December 9, 2025

Related Questions

View All
Do You Ever Feel Like Your Bed Is Vibrating?
Explaining MS to Others: 6 Tips From People Who’ve Lived It
Your Legs Feel Sore With No Bruise: Could It Be Related to MS?