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@A MyMSTeam Member I am so sorry- that’s so frustrating! I’m sorry about the tumor on your spinal cord. Also sending prayers and strength got you!
My journey started in 2015 when I went for a routine eye exam. The doctor ran out of the room, returning with a nurse later. She just blurted out, in an alarming tone, “You have MS! Are you being treated?” Huh? I was told I had optic neuritis and failed the field vision test.
Since I was already seeing a neurologist at the time I thought he wound catch it if (balance issues, dizziness, tremors). My first MRI (aren’t we all familiar lol) showed cortical dysplasia in my front temporal lobe and lesions. I also have had many concussions so they also focused on TBI, bone spurs, skull fracture.
I have been hiding my “drunken sailor” walking and my speech problems as long as possible, but finally got an appointment with a specialist and have CIS. What a wild ride!
And the fatigue- I just fell off a cliff.
Thanks for your support everyone!
@A MyMSTeam Member Really hoping now that you have clear answers, you’ll start getting the care and support you need moving forward. Sending strength your way. 💛
@A MyMSTeam Member That must be such a huge thing to take in. 💛 Getting a completely different diagnosis after thinking it was MS would leave anyone reeling. Hoping your medical team helps you get the care you need soon.
Has anyone else been through something like this?
Thank you yes it’s been really stressful and I’ve had so many mixed opinions by professionals
They have now confirmed a spinal tumour after 6 months of tests and many Drs. 😢
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