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I think I’ve entered it. Big relapse in September - November but starting to ease. Off DMDs for 5 yrs after using them for 30 years or more.Had stable MRIs for that long.
What symptoms did you notice when entering secondary progressive MS?
It sounds like you're navigating a significant change after years of stability. That must feel unsettling, especially after such a long period without active disease progression.
When people transition to secondary progressive MS (SPMS), they often Show Full Answer
My major symptoms are mobility-related. 15 years ago, I could probably walk 500 metres with my wheeled walking frame. 10 years ago, I could probably walk 200 metres. 5 years ago that was down to 50 metres. Now, I'm full-time in a wheelchair.
I don’t typically have flares anymore, but I suffer the debilitating fatigue, the unrelenting spasticity, bladder ‘issues’, etc, that has just worn out it’s ‘unwelcome’ over the last 25 years…..
@A MyMSTeam Member, while I do drive myself to work & back ( 25 miles, each way) whenever I go places with others, they typically do the driving!
It crept up on me with symptoms becoming more persistent until they were 24/7. I developed sensitivity to temperature (hot and cold) and now can’t regulate my body temperature at all. I am only driving locally and expect to stop soon.
Foot drop and falls were the first glaring clue, but also noticed I couldn't walk as far before started dragging my left leg and only mow the front or back or instead of being able to mow my whole lawn, I could only do a quarter. I knew somethng was up but never considered SPMS until I ended up i the ER after a fall.
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