Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
January 10
 · 
Reactions
A MyMSTeam Member

All my MS symptoms started improving within a few weeks of starting 25mg of tenofovir alafenamide, the standard PrEP dose, but did not completely resolve. Once I started taking 150mg of TAF my symptoms completely disappeared and have remained gone for 3 years.

January 12
A MyMSTeam Member

I would love to know the outcome :)

January 11
A MyMSTeam Member

Lyndie ebv stands for Epstein Bar virus. 9 out 10 people have the virus but it is usually dormant in the body and never goes away and doesn’t cause issues for most people, and about 90 % or possibly more than all people with MS are pos for this antibody.

January 10
A MyMSTeam Member

Epstein-Barr Virus causing Multiple Sclerosis has become irrefutable. Evidence indicating that EBV not only causes, but drives disease progression is growing. If EBV is a driver of MS then elimination of EBV would be a rational therapy for MS. There are licensed drugs with activity against Epstein-Barr Virus, such as the antiviral medication tenofovir alafenamide, which may be particularly effective as an inhibitor of EBV lytic reactivation.

See the following dropbox link for a number of scientific papers indicating that Epstein-Barr Virus is the cause and driver of MS disease activity, and on potential antiviral therapies. This link includes the full-text versions of papers referenced below.

https://www.dropbox.com/scl/fo/1qutcgmeqam2ooly...

Dropbox
January 10
A MyMSTeam Member

I am interested in tenofovir alafenamide which seems to be a potent inhibitor of EBV

https://www.pnas.org/doi/10.1073/pnas.2002392117

https://www.pnas.org/doi/10.1073/pnas.2002392117
January 10

Related Questions

View All
A MyMSTeam Member asked a question 💭
Barstow, CA

A MyMSTeam Member asked a question 💭
Chalk River

A MyMSTeam Member asked a question 💭
San Angelo, TX