I have been in Keppra and Lacosamide for my seizures which has slowed down how many I have. I've also have had 3 now while driving and I'm scared to drive. They also said I have lesions on my spine as well now.
February 24
What does it mean when your neurologist says there are too many lesions to count?
When lesions increase significantly and become too numerous to count individually, it typically indicates that MS disease activity has been progressing. This is concerning because it suggests the inflammation and demyelination in your brain Show Full Answer
What does it mean when your neurologist says there are too many lesions to count?
When lesions increase significantly and become too numerous to count individually, it typically indicates that MS disease activity has been progressing. This is concerning because it suggests the inflammation and demyelination in your brain has been more active than previously observed.
The fact that your last countable number was 9-10 lesions and now they're uncountable means there's been substantial disease progression. This is especially significant given that your 9th lesion led to hospitalization and seizure activity. What this means for your treatment:
Your neurologist will likely want to:
- Review whether your current disease-modifying therapy is working effectively
- Consider switching to a more aggressive treatment option
- Monitor you more closely with regular MRI scans
- Address the seizure risk with appropriate medication if needed
The increase in lesions suggests your current treatment may not be controlling the disease activity adequately. This is an important conversation to have with your neurologist about adjusting your treatment plan. Moving forward:
It's understandable to feel worried about this news. Keep a journal of any new or worsening symptoms between appointments, and don't hesitate to reach out to your neurologist if you notice changes. The goal is to get your disease activity under better control to prevent further lesion development and protect your brain health.
February 23
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