Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMSTeam Member asked a question 💭
Fort Erie, ON

I had 2 seizures last June. I was hospitalized and tests galore, no epilepsy. My GP and the Neurologist in ER said that MS and seizures are not directly related. However I suffer pretty severe sleep disturbances. At the time of the seizures I had not slept for 2 full nights, late afternoon of the 3rd day awake I seized.
Anyone with major sleep disturbances ever experience this?
🧡

February 26
 · 
Reactions
A MyMSTeam Member

@TracyDeVinney. My first neurologist told me that but he also told me he could not say for sure if I had MS without a spinal tap and he would not prescribe any meds until I had had t flare ups. I was glad when he moved and I had to get a new neurologist. She is an MS specialist. My first visit she told me I didn't need a spinal tap because she could tell by my MRIs, she also prescribed a medicine. My primary care guy is actually a Nurse Practitioner. He's been more helpful than most of the specialists we see.

February 27
A MyMSTeam Member

I've never had a seizure but it is one of the first things my first neurologist told me could happen

February 27
A MyMSTeam Member

Hi Trace, I’ve had a history of seizures for years and was dx’d with rrms because of it (seizures).

It *may have a lot to do with where a lot of myelin damage has been located.

Example: prefrontal lobe area with extensive area/s of damaged, missing myelin sheath.

I do fall into that small 2-5% as listed above by MyMsTeam. I’m assuming those numerics are accurate? Idk 🤷‍♂️

Best,

Danny

February 26
A MyMSTeam Member

Yes it is, Trace!

February 26
A MyMSTeam Member

Thank you Danny. This has got to be one of the most misunderstood illnesses.

February 26

Related Questions

View All
A MyMSTeam Member asked a question 💭
edmonton, alberta, CANADA

A MyMSTeam Member asked a question 💭
Batesville, AR