I had 2 seizures last June. I was hospitalized and tests galore, no epilepsy. My GP and the Neurologist in ER said that MS and seizures are not directly related. However I suffer pretty severe sleep disturbances. At the time of the seizures I had not slept for 2 full nights, late afternoon of the 3rd day awake I seized.
Anyone with major sleep disturbances ever experience this?
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@TracyDeVinney. My first neurologist told me that but he also told me he could not say for sure if I had MS without a spinal tap and he would not prescribe any meds until I had had t flare ups. I was glad when he moved and I had to get a new neurologist. She is an MS specialist. My first visit she told me I didn't need a spinal tap because she could tell by my MRIs, she also prescribed a medicine. My primary care guy is actually a Nurse Practitioner. He's been more helpful than most of the specialists we see.
I've never had a seizure but it is one of the first things my first neurologist told me could happen
Hi Trace, I’ve had a history of seizures for years and was dx’d with rrms because of it (seizures).
It *may have a lot to do with where a lot of myelin damage has been located.
Example: prefrontal lobe area with extensive area/s of damaged, missing myelin sheath.
I do fall into that small 2-5% as listed above by MyMsTeam. I’m assuming those numerics are accurate? Idk 🤷♂️
Best,
Danny
Yes it is, Trace!
Thank you Danny. This has got to be one of the most misunderstood illnesses.