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MS feels very isolating & lonely. Lost majority of my relationships.

A MyMSTeam Member asked a question 💭
London, UK
March 10
 · 
Reactions
A MyMSTeam Member

MS causes a majority of problems

March 10
MyMSTeam

How can you cope with feeling isolated and losing relationships due to MS?

You're not alone in feeling this way. Many people with MS describe losing friendships and feeling deeply isolated, especially when others don't understand what they're going through. It's one of the most painful parts of living with MS.

MS often Show Full Answer

How can you cope with feeling isolated and losing relationships due to MS?

You're not alone in feeling this way. Many people with MS describe losing friendships and feeling deeply isolated, especially when others don't understand what they're going through. It's one of the most painful parts of living with MS.

MS often acts like a filter for relationships. Some people fade away quietly, while others who truly care may grow closer. One MyMSTeam member shared, "MS has inadvertently sorted out those who care and those who don't. You find out who your real friends are."

Here are ways others have found helpful:

* Connect with people who understand MS, including online communities where you can share experiences without judgment
* Talk openly about your limits and needs with the people still in your life
* Consider counseling or support groups specifically for MS
* Reach out to MS nurses or healthcare providers who can offer resources
* Focus on quality over quantity in friendships

Social isolation is a real concern with MS and can worsen depression and other symptoms. Even small connections matter. Some members found that fewer but deeper friendships became more meaningful than large social circles.

The loneliness you're feeling is valid, and it's okay to grieve the relationships you've lost. Many people have walked this path and found new ways to connect that feel more authentic and supportive.

March 10
A MyMSTeam Member

Hello
Ive learned a lot over the years of looking after everyone else when your cards are dealt in somewhat not so winning we are of tremendous strength and faith just out of no where a tiny ray of sunshine becomes hope.
A young man i knew once said all the time
Never in front never behind always side by side
I sebd my most caring thoughts and prayers to you

Mar22

August 17
A MyMSTeam Member

Myself included, no friends or family really. Sit everyday on my own for long periods of time. Poor mental health because of it all. I just wish I had someone in my life thats accepts me and understands me.

August 17
A MyMSTeam Member

true that!

March 11

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