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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has anyone experienced extreme bone loss from steroids that led to losing your teeth?

A MyMSTeam Member asked a question 💭
Sophia, NC

I’ve had MS since I was 15.
Officially diagnosed at 24.
I’m now 64 and I know things could be much worse.
Still I remember so much that has been taken away and that makes me sad.
Losing my teeth is just another thing that I have to deal with.
I do miss them.
I have been too tired to eat but I still had that choice.
Now that choice has been taken away too.

April 1
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Reactions
A MyMSTeam Member

I totally feel you. I had to have my remaining teeth removed last year. They just crumbled into nothing. Still, I now have a full set of dentures and my confidence has increased dramatically.

April 2
A MyMSTeam Member

My teeth, crumbled after I had my premature son nearly month early. He weighed a whopping 9 lbs 5 oz premature. He sucked all the calcium out of my teeth. I had horrible nerve pain from each one. So, glad of that. I believe several diseases contributed as well. I had dentures made $3k. My inflammation, everywhere causes swelling and redness including my gums.

I use a chopper on meals I can't chew too good. But, I make lots of meals that are tender enough.

Gentle hugs 🦋🪷🐞

April 2
A MyMSTeam Member

had my uppers removed several years ago.. got the top denture.. I eat, chew gum.. just can't wolf whistle with my fingers.. oh well.. hadn't done that in eons anyway!

April 2
A MyMSTeam Member

Diagnosed with osteoporosis from steroids and now taking prescription Alendronate once a week...

April 2
MyMSTeam

Has steroid use led to bone loss and tooth loss in people with MS?

Yes, long-term steroid use can cause significant bone loss (osteoporosis), and several MyMSTeam members have shared similar experiences. One member wrote, "My bones are so soft now that if I bump them, I fracture them. Thus, my broken ribs, wrist, and hip Show Full Answer

Has steroid use led to bone loss and tooth loss in people with MS?

Yes, long-term steroid use can cause significant bone loss (osteoporosis), and several MyMSTeam members have shared similar experiences. One member wrote, "My bones are so soft now that if I bump them, I fracture them. Thus, my broken ribs, wrist, and hip. My doctor says it's normal with so many years of steroid use."

Steroids affect how your body uses vitamin D and calcium, which are essential for maintaining bone strength. The most significant bone loss typically happens in the first six months of steroid use, though it can continue over time with prolonged use.

People with MS also face increased dental challenges beyond bone loss. MS symptoms like fatigue, muscle weakness, and coordination issues can make proper oral hygiene difficult. Additionally, people with MS are more likely to experience gum infections, cavities, and gingivitis compared to the general population.

Your feelings of loss are completely valid. Living with MS means adapting to many changes over time, and losing your teeth represents another significant adjustment. The fatigue you mention is experienced by about 78 percent of people with MS, making even basic self-care tasks exhausting.

If you haven't already, consider discussing your bone health and dental concerns with your healthcare provider. They may recommend bone density monitoring or treatments to help prevent further bone loss.

April 1

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