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My first sign of MS at 13 years old, was very intense itching numbness, sweating, vertigo, and optic neuritis at 21 yrs old.

A MyMSTeam Member asked a question 💭
Ridgecrest, CA

Diagnosed at 21, symptoms started at 13 yrs old. I’ve had MS for more than 25 years now, I use Kesimpta injections, Gabapentin 300 mg twice daily, Baclofen 10 mg 4 times daily, Myrbetriq 50 mg daily and Nucynta 75 mg 3 times daily for all the chronic pain. About 7 years ago, my old neurologist started me on Novantrone infusions (had 5 infusions), but I’m not allowed to take the chemo drug anymore. It put my MS in remission for quite a long time.

April 4
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MyMSTeam

What was your experience with early MS symptoms and diagnosis?

Your experience of having symptoms start at 13 but not getting diagnosed until 21 is actually quite common with pediatric-onset MS. Many people recall experiencing unusual symptoms in their early years that weren't recognized as MS at the time.

Teenagers often Show Full Answer

What was your experience with early MS symptoms and diagnosis?

Your experience of having symptoms start at 13 but not getting diagnosed until 21 is actually quite common with pediatric-onset MS. Many people recall experiencing unusual symptoms in their early years that weren't recognized as MS at the time.

Teenagers often have mild symptoms that fly under the radar, leading to delayed diagnosis into adulthood. One MyMSTeam member shared a similar story: "It took 19 long years to diagnose my MS. I was 16 when it started. My relapses were so far apart in the beginning, but as the years went by, my relapses became closer together, and more symptoms cropped up."

Your first symptom of optic neuritis at 21 is particularly significant - vision issues are often an early sign of MS, with 1 in 4 people noticing eyesight problems as their first symptom. Optic neuritis is a common MS-related issue caused by inflammation of the optic nerve.

It's worth noting that during the first six years after pediatric-onset MS, children and teens experience relapses two to three times more frequently than adults with early MS. However, they also tend to recover more quickly and develop disabilities at a slower rate.

Your current treatment plan with Kesimpta and symptom management medications shows you're actively managing your MS after more than 25 years with the condition.

April 4

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