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Does anyone else have pain with their MS? My neurologist said pain isn't part of MS but I don't know.

A MyMSTeam Member asked a question 💭
Pensacola, FL
April 14
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MyMSTeam

Is pain a common symptom of MS?

Yes, pain is absolutely a part of MS. Research suggests that up to 80 percent of people with MS experience pain at some point during their disease. Your neurologist's statement doesn't align with current medical understanding, and you may want to seek a second opinion or discuss this Show Full Answer

Is pain a common symptom of MS?

Yes, pain is absolutely a part of MS. Research suggests that up to 80 percent of people with MS experience pain at some point during their disease. Your neurologist's statement doesn't align with current medical understanding, and you may want to seek a second opinion or discuss this further.

Pain in MS is very real and affects more than 60 percent of individuals with the condition. As one neurologist emphasized, "Pain is not something that you should put up with. So if you're hurting, I don't want you just to say, 'Well, that's too bad. That's part of MS.' No. Pain is something that we can treat."

There are two main types of MS pain:

- Neuropathic (nerve) pain: Sharp, burning, shooting, or electric shock-like sensations caused by MS damage to the protective coating around nerves
- Musculoskeletal pain: Aching or sharp pain in muscles and joints, often from altered posture, gait changes, or muscle spasms

Common pain symptoms include trigeminal neuralgia (facial pain), Lhermitte's sign (electric shock down the spine), the MS hug (squeezing around the torso), back pain, and muscle spasms.

Many MyMSTeam members share similar experiences. One member noted, "I didn't start having pain until five years after my medical diagnosis."

Treatment options exist, including medications and non-drug approaches. Don't hesitate to advocate for yourself and seek proper pain management.

April 14
A MyMSTeam Member

Pain is absolutely a component of MS. Maybe your neurologist is referring to a specific pain or symptom , that is caused by something else like arthritis etc. I would suggest finding out what they meant and possibly finding a new doctor.

April 15
A MyMSTeam Member

Yes Tiffany pain and MS goes hand and hand. Like gloves on a hand. Somewhat like love and marriage, you can't have one without the other.

April 15
A MyMSTeam Member

There is not one thing great or wonderful about this MS crap, it's all painful that's my opinion

April 15
A MyMSTeam Member

Many with MS have pain - I would get a second opinion. 💜

April 14

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