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how this drug will effect my MS. I've had MS for 26 years and am some where between RR and Secondary. So... is there anyone out there who takes Prolia and if it changes your MS in any way? Thanks, Valerie

April 19
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A MyMSTeam Member

I had 2 Prolia injections 6 months apart and then my insurance wouldn’t cover it anymore and the switched me to Jubbonti which is also an injection every 6 months
Neither one effected my MS

April 20
A MyMSTeam Member

I have or had osteoporosis. I take alendronate, it's a once a week pill. My osteoporosis improved to where it is now osteopenia. I had the osteoporosis diagnoses a few years before the MS one. I get a bone density scan every year when I get my mammogram, now it's every other year for the scan

April 20
MyMSTeam

Are you concerned about how Prolia might affect your MS?

Many MyMSTeam members have osteoporosis alongside MS, so you're definitely not alone. Having both conditions is quite common, especially for those who've been living with MS for many years or have taken steroids for symptom management.

While the search results don't Show Full Answer

Are you concerned about how Prolia might affect your MS?

Many MyMSTeam members have osteoporosis alongside MS, so you're definitely not alone. Having both conditions is quite common, especially for those who've been living with MS for many years or have taken steroids for symptom management.

While the search results don't specifically mention Prolia experiences, they do discuss other osteoporosis medications like bisphosphonates (Actonel, Boniva, Fosamax) and other treatments (Tymlos, Evenity, Forteo) that members use alongside their MS care.

The connection between MS and osteoporosis happens for several reasons:

- Reduced mobility can weaken bones over time
- MS-related inflammation may interfere with bone renewal
- Long-term steroid use can increase osteoporosis risk
- Low vitamin D levels are common in MS

Important considerations:

Since you're between relapsing-remitting and secondary progressive MS, it's crucial to discuss with your neurologist how Prolia might interact with your specific MS treatment plan. Your healthcare team can help weigh the benefits of preventing fractures against any potential concerns.

Many members successfully manage both conditions with medication, vitamin D and calcium supplementation, fall prevention strategies, and staying as active as possible within their abilities.

April 19

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New Brockton, AL