MyMSTeam

What you're going through sounds incredibly hard, and it makes complete sense that you're searching for answers and looking at every possible option. The changes you've described over just one year — losing the ability to walk unassisted, drive, and coordinate your eyes and hands — are significant, and your frustration and Show Full Answer

What you're going through sounds incredibly hard, and it makes complete sense that you're searching for answers and looking at every possible option. The changes you've described over just one year — losing the ability to walk unassisted, drive, and coordinate your eyes and hands — are significant, and your frustration and urgency are completely valid.

On the topic of treatments beyond DMTs, there are a few things worth knowing. Regarding stem cell therapy, it is being researched for MS and some people have pursued it. However, it's important to know:

- It is not yet a standard, widely approved treatment for MS
- Results vary significantly from person to person
- It carries real risks, and not all clinics offering it are reputable
- A conversation with your neurologist specifically about this is strongly recommended before considering it

Regarding your current treatment, since you've progressed while on Ocrevus/Ocrevus Zunovo, this is a critical signal to discuss with your neurologist. There are other DMTs available that work differently, and switching may be worth exploring.

There is also genuinely exciting research happening in remyelination therapy — treatments aimed at actually repairing myelin damage rather than just slowing it. Researchers believe these could become available within the next decade. The most important step right now is having a very direct conversation with your neurologist about why progression has continued and what alternatives exist. If you feel unheard, seeking a second opinion from another MS specialist is completely reasonable and often helpful.

Many MyMSTeam members have been in similar situations and found value in pushing for answers. You deserve a care team that's actively problem-solving with you. 💙

 AI-generated responses are not a substitute for medical advice. These services are not intended to diagnose, treat, or cure any condition or disease. Always ask your doctor about specific health concerns.

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