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I’ve been put on Gabioentin, as the other med option interferes with other meds I’m taking. It doesn’t seem to be working. The pain is random and I’m scared of it. Advice? Stories? Help!

May 25
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Answer Summary

Members responded with empathy to a question about trigeminal neuralgia, widely describing it as one of the worst pains they have ever... Read more

Members responded with empathy to a question about trigeminal neuralgia, widely describing it as one of the worst pains they have ever experienced, with episodes that cause crying and emotional exhaustion. Several members shared medication experiences including gabapentin and carbamazepine, with some noting that higher doses helped reduce episode frequency, while others struggled with significant side effects. A recurring theme was the importance of staying in close contact with a neurologist, and members also suggested ice, facial massage rollers, and ibuprofen as tools that provided some relief.

A MyMSTeam Member

I've been taking Gabapentin for years, along with other meds. I get dry mouth and sleepy is all I can tell.

May 25
A MyMSTeam Member

Other Common Options (Often Used if First-Line Not Tolerated or Insufficient)
These are frequently tried in MS-related TN, either alone or in combination: 
• Gabapentin (Neurontin) or Pregabalin (Lyrica): These gabapentinoids are commonly used for neuropathic pain in MS. They may have better tolerability in some MS patients compared to carbamazepine. 
• Lamotrigine (Lamictal): Often helpful, sometimes as add-on therapy. Slow titration is needed to minimize rash risk. 
• Baclofen (Lioresal): A muscle relaxant that can help TN pain, especially useful in MS patients who also have spasticity. 
Other agents sometimes considered include topiramate or, in specific cases, misoprostol, though evidence is more limited. 

May 25
A MyMSTeam Member

They were most likely ms exacerbations in my case. I just kept taking ibuprofen and just pushed through it. There are people on this site that use some drug. I cannot remember the name of it.

May 25
A MyMSTeam Member

Oh my, Anna, that's horrible! Mine is just twinges that get bothersome; I use a facial massage roller on my cheek and it helps, pain goes away after 10-20 min. Have your told your neurologist about this? Are you taking any Advil or Aleve or other pain reliever for it?

May 25 (edited)
A MyMSTeam Member

Yes I’ve had it twice Lasted about a month for me. Terrible terrible. pain. I’ve not experienced it again. Last time was about. 20 years ago.

May 25

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