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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

When your family is suffering from various conditions how do everyone cope better 🙏 It's so hard to handle. We are in different states.

A MyMSTeam Member asked a question 💭
Washington, NJ
May 26
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A MyMSTeam Member

We have learned to be better listeners and do what we can do to help if they want help. That’s a very important distinction. Sometimes they just require a true listener. I have MS my sister insulin dependent diabetes, my other sister hip, shoulder pain as well as fibromyalgia. Me 58, sis 1 46, sis 2 52…..my brother back injuries from accident so now bad arthritis 51….

6 days ago
A MyMSTeam Member

One of the things that I did was sign up with Jackie Lawson who is one of those greeting cards online companies. That way I can send birthday cards get well cards graduation cards and so many more cards as they come up staying in touch doesn't cost much once you play for the annual cost and you don't have postage or anything just send out the greetings and start creating your calendar with all the dates and that you need. That way you can always be with them in spirit

May 26
MyMSTeam

When family members are spread across different states and everyone is dealing with their own health challenges, it can feel incredibly overwhelming. Living with MS while also worrying about loved ones far away adds a real emotional weight. You're not alone in feeling this way. 💙

Here are some ways families navigating MS Show Full Answer

When family members are spread across different states and everyone is dealing with their own health challenges, it can feel incredibly overwhelming. Living with MS while also worrying about loved ones far away adds a real emotional weight. You're not alone in feeling this way. 💙

Here are some ways families navigating MS have found helpful:

- Be honest about your limits — Let family know when you're having a good day vs. a bad day, even from a distance. Honesty builds understanding.
- Under-plan, not over-plan — Keep expectations realistic so no one feels let down. You can always do more if energy allows.
- Lean on each other — As one MyMSTeam member shared, "We did it together as much as we could." Even from afar, that togetherness matters.
- Use technology — Video calls, group chats, and shared updates can help bridge the distance.
- Distribute responsibilities — Let different family members take on different roles based on what they can manage. It's also really important to take care of yourself emotionally. MS already demands so much, and carrying worry for others on top of that is exhausting.

Consider reaching out to a therapist or local support group — not just for your MS, but for the emotional load of being a long-distance caregiver or support person. Your feelings are completely valid, and getting support for yourself helps you show up better for everyone else. 🙏

May 26
A MyMSTeam Member

TamWarren,We must always listen to what is bothering them. They need to be heard.

6 days ago
A MyMSTeam Member

@A MyMSTeam Member what wonderful idea!

May 26

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