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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMSTeam Member asked a question 💭
Centralia, WA
June 13
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A MyMSTeam Member

“Occipital neuralgia is a sharp, jabbing, electric-shock-like pain in the back of the head and scalp. In multiple sclerosis (MS), it occurs when demyelination (damage to the protective nerve coating) affects the upper cervical spine or occipital nerve roots. It can be a primary MS symptom or signal a relapse.”

June 13 (edited)
A MyMSTeam Member

I have occipital neuralgia. It acts up from time to time and definitely when I touch the back of my neck. I take Horizant because I can’t tolerate gabapentin. Horizant is extended release gabapentin. It helps a bit but I still have occipital neuralgia.

June 14
A MyMSTeam Member

Thanks for mentioning gabapentin. I tried it and seemed to have some relief. I know it will settle down soon.
Like you said, it just acts up from time to time. Nasty when it does!

June 15
A MyMSTeam Member

Thank you!

June 14
A MyMSTeam Member

No, no actual diagnosis at this point.

June 13

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