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July 6
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Answer Summary

Members discussed the connection between MS and PIRA in response to someone whose symptoms were worsening despite their doctor saying they... Read more

Members discussed the connection between MS and PIRA in response to someone whose symptoms were worsening despite their doctor saying they were stable. Several members explained that PIRA occurs when disability gradually worsens without new MRI lesions or active relapses, and that it differs from but relates to smoldering MS, which involves ongoing low-level inflammation and nerve damage. A recurring theme was encouraging the original poster to advocate for themselves, bring this new knowledge to their appointment, and remind their doctor that their lived experience deserves to be taken seriously.

A MyMSTeam Member

Thank you to all that have replied. Now when I go to the Dr next week I can not only have some information but I can push him to listen to me. Sometimes I feel like he just blows me off and doesn't listen to me. Thank you again to all of you

July 7
A MyMSTeam Member

@A MyMSTeam Member yes , thank
You for mentioning that 🤗

July 7
A MyMSTeam Member

@A MyMSTeam Member PIRA is exactly the same as smoldering lesions. They won't show up on MRI as active but they are still doing damage. You also get damage to the white matter and atrophy of the brain 🧠

July 7
A MyMSTeam Member

Good luck at your appointment. I am glad you have an opportunity to voice your concerns . It is your body and you know it better than any doctor. 🙏

July 6
A MyMSTeam Member

Thank you, for all the information. I see my neurologist om Friday and I will discuss it with him on Friday. All my dr keeps telling me that my "episodes" are considered psydo flare ups to me that makes no sense because what is happening to me are real and I feel like what is happening is being dismissed.

July 6

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