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July 6
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Answer Summary

Members responded with care and practical advice to someone asking what to do about new symptoms and a new medication for MS. Several members... Read more

Members responded with care and practical advice to someone asking what to do about new symptoms and a new medication for MS. Several members suggested building a strong support team, including a neurologist, psychologist, and spiritual or online communities, while one member recommended writing down all symptoms before appointments so nothing gets forgotten. A recurring theme was encouragement to stay patient with new medication, communicate openly with a neurologist about changing symptoms and MRI results, and lean on supportive communities when family is not available.

MyMSTeam

Navigating new symptoms while also adjusting to a new medication can feel overwhelming โ€” but it's important to remember that new symptoms don't automatically mean the medication isn't working. It could be a side effect, or something else entirely going on.

The best first step is to contact your healthcare team and let them Show Full Answer

Navigating new symptoms while also adjusting to a new medication can feel overwhelming โ€” but it's important to remember that new symptoms don't automatically mean the medication isn't working. It could be a side effect, or something else entirely going on.

The best first step is to contact your healthcare team and let them know what's happening. They can help figure out whether the symptoms are:

- A side effect of the new medication
- Related to MS activity
- Influenced by other lifestyle factors like sleep, hydration, or stress A good neurologist will take a "multipronged approach" โ€” looking at everything that could be contributing before making any changes. They might suggest small adjustments first, like improving sleep, staying hydrated, or addressing ergonomic or stress-related factors, before deciding whether to change the medication.

Don't try to manage this alone โ€” keeping open communication with your care team is key. ๐Ÿ’™

July 6
A MyMSTeam Member

Hi. Sorry to hear you have new symptoms. The article really says what we can do. I have a good support team which includes a psychologist, psychiatrist, this site, my MS doctor, and a spiritual group, plus friends.
I donโ€™t include family members bc they just donโ€™t get it. Just being honest.

July 6
A MyMSTeam Member

When did you start your new medication? It takes time for your body to get used to it and for it to start working. @A MyMSTeam Member

July 7
A MyMSTeam Member

Sorry to hear that Cheryl. Wish you well and hope you plateau.

July 7
A MyMSTeam Member

Has your MRI changed? Are you having new symptoms or a worsening of your usual symptoms?

July 7

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TEXAS, TX