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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How long did it take to see a neurologist and get treatment if any? I was told they just treat symptoms but hear ppl taking things to help.

A MyMSTeam Member asked a question 💭
Belleville, ON

Im still waiting to hear from a neurologist. Feeling frustrated. I feel like since I got discharged from hospital everything they told me would happen hadn't. No pt or ot. My nurse practitioner had to send off a referral to kingston ms clinic, when they told me id go to Peterborough.

July 8
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Answer Summary

Members shared their experiences navigating the frustrating wait to see a neurologist and get MS treatment, with one member waiting nearly 3... Read more

Members shared their experiences navigating the frustrating wait to see a neurologist and get MS treatment, with one member waiting nearly 3 years before finally seeing an MS specialist who prescribed a DMT and symptom-relief medications like baclofen. Several members emphasized the importance of advocating strongly for yourself, with the recurring advice being to seek out an MS specialist rather than a general neurologist whenever possible. The emotional thread running through the conversation was one of solidarity, with community members reminding each other that an MS diagnosis can feel isolating but that pushing for answers and leaning on support makes a real difference.

A MyMSTeam Member

Agreed specialist is best either way get what u like and what helps you best😁

July 8
A MyMSTeam Member

yes I am

July 8
A MyMSTeam Member

I would be getting some answers for damn sure make them tell you what's going on sometimes you have to be a Bitch to get what you need😁

July 8
A MyMSTeam Member

what Drs are you going too that's just bs

July 8
A MyMSTeam Member

Seeing a neurologist is key, but if you can find/request one that is an "MS Specialist" is golden! Do your research, get help when needed, still love life. Wishing you all the best, @A MyMSTeam Member!

July 8

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