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A MyMSTeam Member asked a question 💭
Hawkinsville, GA
July 20
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Answer Summary

Members shared the wide range of doctors who first diagnosed their MS, including neurologists, ER doctors, ENT specialists, nurse... Read more

Members shared the wide range of doctors who first diagnosed their MS, including neurologists, ER doctors, ENT specialists, nurse practitioners, and MS specialists. Several members described unexpected or unusual paths to diagnosis, like an ENT noticing signs during an unrelated visit, or receiving a diagnosis via text message after a long ER stay. A recurring theme was that optic neuritis and other sensory symptoms were often early warning signs, and many members had multiple appointments and MRIs before getting a clear answer.

A MyMSTeam Member

At first it was my primary, I was in the hospital and they were checking me for some other issue. I was then sent to a neurologist.

July 21
A MyMSTeam Member

ER Doctor, neurologist, MS neurologist

July 21
A MyMSTeam Member

@A MyMSTeam Member For me, it was extreme pain in my left eye when I looked from side to side or up and down. I couldn't even lie on my left side due to pain. I had some cloudiness in the upper left quadrant of my vision, but luckily that was it. It resolved in about 3 months. They said it was in the early stages, which was good, but I CAN'T imagine what it feels like to be more severe.

July 21
A MyMSTeam Member

@A MyMSTeam Member everyone experiences it differently, the first time I had it the entire top portion of my vision field was gone. The second time was like looking through a dirty pair of glasses that had a big blob on the lense.

July 21
A MyMSTeam Member

So what does optic neuritis feel like?

July 21

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