Same here. Diagnosed in 24. Did Kesimta for a year. Felt tearable all the time. So I stopped taking it 5 months ago. Have felt way better. Waiting on MRI appointment. Praying for you.
July 27
It's completely understandable to feel nervous heading into your first MRI since your diagnosis — that's a big moment, and the new numbness and weakness you're experiencing makes it feel even more significant.
The good news is that this first MRI will actually serve as your baseline — a starting point that shows what your Show Full Answer
It's completely understandable to feel nervous heading into your first MRI since your diagnosis — that's a big moment, and the new numbness and weakness you're experiencing makes it feel even more significant.
The good news is that this first MRI will actually serve as your baseline — a starting point that shows what your MS looks like now that you're on Kesimpta. Doctors use this to compare future scans and track how well your treatment is working. Here's what doctors typically look for when monitoring MS treatment effectiveness:
- New or growing lesions on the brain or spinal cord
- Active lesions that "light up" with contrast dye (gadolinium), indicating current inflammation
- Relapse frequency — how often flares are happening compared to before treatment
- Disability progression tracked through physical exams and standardized scales
The numbness and weakness you're feeling are worth mentioning to your neurologist before or after the scan. Symptoms don't always match what shows up on an MRI — sometimes new activity appears on scans before symptoms do, and sometimes symptoms occur without major new MRI changes. If the MRI does show new lesions, that's important information — not a dead end. It helps your care team decide whether Kesimpta is working well enough or whether adjustments to your treatment plan might be needed. You're your doctor's best partner in this, so keep reporting every symptom you notice.
Many MyMSTeam members have been in exactly this position and found that staying open with their neurology team made a real difference in managing their MS effectively. You've got this! 💪
July 26
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