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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Secondary Progressive MS. I've had itching, buzzing, tingling, burning, severe muscle spasms etc. But I have never had lightning bolts fly down my arm. When the nurse missed the vein and that happened I thought I was going to scream. It was all I could do to keep from passing out. I am extremely pain tolerant too! Not only that, but the sensitivity lingers for weeks. I can barely touch the place where the trauma occurred and the same excruciating pain flies through me. Can anyone else relate… read more

August 4
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A MyMSTeam Member

Maybe they can use a vein finder machine next time , it’s helpful if you have difficult veins

August 4
MyMSTeam

What a rough experience — that sounds absolutely awful, and it makes complete sense that it shook you, especially given how pain-tolerant you are.

Yes, hypersensitivity to pain is very much a real MS experience. It's called allodynia — where things that normally wouldn't hurt become painful — and hyperalgesia, which is an Show Full Answer

What a rough experience — that sounds absolutely awful, and it makes complete sense that it shook you, especially given how pain-tolerant you are.

Yes, hypersensitivity to pain is very much a real MS experience. It's called allodynia — where things that normally wouldn't hurt become painful — and hyperalgesia, which is an extreme sensitivity to pain. Both are linked to nerve damage caused by MS. What you're describing — the lightning bolt sensation shooting down your arm — sounds very similar to what's known as Lhermitte's sign, or what some MyMSTeam members call "MS zingers." These are electric shock-like sensations caused by nerve damage in the central nervous system.

The lingering sensitivity afterward is also consistent with neuropathic pain, where nerve hypersensitivity can persist long after the initial trigger. Many MyMSTeam members with Secondary Progressive MS relate to these kinds of intense, unpredictable pain experiences. You're definitely not alone in this.

It's really important to tell your neurologist about this, especially the lingering sensitivity. There are medications and management strategies that may help reduce neuropathic pain and hypersensitivity.

August 4
A MyMSTeam Member

Yes, this happened to my mother. Please make sure that every phlebotomist knows this of you.

August 4
A MyMSTeam Member

That shit sucks 😕
Try to ice it to calm it down
I'm so sorry that happened to you

August 5
A MyMSTeam Member

I'm so sorry you went through that. I hope it settles down soon, and if it keeps lingering for weeks or gets worse, it's definitely worth mentioning to your neurologist or the team who did the blood draw. Wishing you some relief. ❤️

August 4

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