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A MyMSTeam Member asked a question 💭
Caliente, CA
August 14
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A MyMSTeam Member

I had a leak and refused the blood patch. I had a caffeine infusion, which helped a lot and had to lay down for days . The body naturally heals .

August 15 (edited)
A MyMSTeam Member

My PCP new I had MS when my momma wheeled me into his office in January 2001. I couldn't walk, my eyes were rolling in their sockets uncontrollably (3rd nerve cranial palsy)which made me unable to see except like a kaleidoscope. I had vertigo, slurred speech, facial numbness and all over body weakness. Had to wait 2months to see neuro as there was only 1 with 30minutes from me. He said he thought it was but didn't want to pin the diagnosis on me to wait a while. 7months later he released me to return to work. Single mom I returned. Struggled the next 13/14yrs got diagnosed with another Brain mri and lumbar puncture by a different neurologist. Same symptoms except I was walking but stumbling and burning feet and double vision instead of kaleidoscope vision.

August 16
A MyMSTeam Member

THAT damn migraine after is a killer. I had to lay everywhere until I went in for a blood patch, when cerebral fluid is leaking out of the hole where the puncture was- that can only be treated with "a blood patch", I walked out singing, sorry you suffered so long, @A MyMSTeam Member!

August 15 (edited)
A MyMSTeam Member

Im in ecu school area. I made a appt after I couldn't move my legs where I was laying. Saw neurology an they stood me up an dwn that I didn't have it. I researched it. An knew. This happened in Jan an come June still no answer. So I asked to refer me to Chapel Hill or somewhere that way. Just not with yall.so the wanted to do one more test spinal tap. I agree but God I wish I didn't. I was in bed almost a month with that headache. That showed I had it. An Chapel Hill agreed wit result an thats my diagnosis of ms

August 15
A MyMSTeam Member

I went to the doctor, my primary guy, for a hand problem and he ended up sending me to get an MRI, checking for a different problem. Unexpectedly, to me it turned out to be MS. I was diagnosed with just several MRIs

August 14

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