Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
All Resources Treatments A-Z Personal Assistant Help Center Crisis
Powered By
Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Sometimes I don't hear from you...

A MyMSTeam Member asked a question 💭
Los Angeles, CA

and then I try my damndest to look you up to place a well intentioned message to your wall. and..then I forget (damn MS) your screen name. Ugh, I h8 MS, with a purple fashion!

September 2
 · 
Reactions

Answer Summary

Members connected warmly over the shared frustrations of MS-related memory loss, brain fog, and the challenge of staying in touch online.... Read more

Members connected warmly over the shared frustrations of MS-related memory loss, brain fog, and the challenge of staying in touch online. Several members described practical coping strategies like writing things down repeatedly, keeping a notebook handy, and using phone notes to hold onto words or names that slip away. A recurring theme was the humor and tenderness the community uses to cope, with members laughing together about forgotten words and lost posts while reassuring each other that they are seen, remembered, and never truly lost in the group.

A MyMSTeam Member

Come see!

September 2
A MyMSTeam Member

@A MyMSTeam Member yep those I call brain farts.

September 2 (edited)
A MyMSTeam Member

one eyed one armed flying purple people eater 😁

September 3
A MyMSTeam Member

The one eyed, purple people eater, @A MyMSTeam Member?

September 3
A MyMSTeam Member

@A MyMSTeam Member I love seeing this thread and recognizing one of the things that I deal with daily: voice to text failures! I am certain what you intended to say was passion, but what phone's voice to text system translated that into was fashion, which yes could lead to an actual product line on Etsy!

September 3

Related Questions

View All
Life With MS Sometimes Means Grieving the ‘Original’ You
When I Fall
6 Tips: When Friends Don't Understand MS or Chronic Illness