Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

The mental struggles and pain. The fighting against doctors and the medical community to treat the MS symptoms without so many questions and such an uphill battle! The anger and drama. I just feel discouraged and depressed if I let myself! Why does it have to be so hard?

September 19
 · 
Reactions

Answer Summary

Members responding to the question about feeling worn out from MS overwhelmingly agreed that exhaustion, pain, and emotional struggle are a... Read more

Members responding to the question about feeling worn out from MS overwhelmingly agreed that exhaustion, pain, and emotional struggle are a constant daily reality. Several members shared personal coping strategies, including supplements like GABA and L-theanine, medications like low-dose naltrexone and Robaxin, and habits like swimming, rest breaks, and adding things one at a time to track what helps. A recurring theme was leaning on faith, community support, and a determined mindset to keep going despite the relentless challenges of living with MS.

A MyMSTeam Member

Many women report being 'dismissed' by doctors, survey says

ABC7 Bay Area
https://abc7news.com › post › many-women-report-bei...

September 19
A MyMSTeam Member

Speaking of being ignored and dismissed, there's a new survey saying more women are not being taken seriously enough when it comes to talking to or just plain mentioning symptoms to a health care provider.

September 19
A MyMSTeam Member

I know how exhausting the pain and spasms can become, so I thought I would share a few things that have helped me.

These aren't recommendations or claims that they will work for everyone. They are simply things I came across while reading about MS, pain and spasms that seemed promising enough for me to try. I researched each one before trying it, and I added them **one at a time, usually a week or two apart**, so I could tell what helped and whether anything caused side effects.

| What I've tried | My experience |
| ---------------------------------- | ----------------------------------------------------------------------------------------------------------------------------------------------------- |
| **Arnica gel** | Available OTC. I find the cooling gel soothing for pain and spasms, and it can also be useful for bruising. |
| **Cyclobenzaprine (Flexeril)** | This is prescription-only. It helps me when my spasms are particularly troublesome, but it can cause sleepiness, so I try to use as little as I need. |
| **GABA (gamma-aminobutyric acid)** | An OTC supplement. I've found that it helps calm my spasms. |
| **L-theanine** | Another supplement I've found helpful and calming. |
| **Saffron** | This has also been helpful for me as part of what I use when my spasms are acting up. |

One thing I would strongly suggest when experimenting with supplements is **don't start several things at once**. If you have a good or bad reaction, you want to know which one caused it.

I also choose supplements with **as few additional ingredients as possible**. That reduces the chance that I'm reacting to a filler or some other ingredient rather than the supplement itself.

Again, this is just **my personal experience with things I read about and decided to try**, not a claim that any of them will work for someone else. Check possible interactions and whether they're appropriate for you, especially if you take other medications.

If anyone wants to know the particular brands I use, I'm happy to share them.

September 20
A MyMSTeam Member

YI’m wore out the moment I wake up. I keep trudging and I hope you will too!

September 20
A MyMSTeam Member

btw Brenda, sometimes I sing Maroon 5's "This Love," Foreigner's "Head Games".

5 days ago

Related Questions

View All
A MyMSTeam Member asked a question 💭
Terryville, CT

A MyMSTeam Member asked a question 💭
Covington, PA

Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In