Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

MS for 15 years I have been without treatment of Briumvi for about one year

October 18
 · 
Reactions
MyMSTeam

What you're describing β€” a burning, wrapping sensation from your lower back around your abdomen β€” sounds like it could be the "MS hug." This is a well-known MS symptom caused by nerve damage that sends incorrect pain signals to the brain, even when there's no physical injury.

The burning feeling is a type of neuropathic pain Show Full Answer

What you're describing β€” a burning, wrapping sensation from your lower back around your abdomen β€” sounds like it could be the "MS hug." This is a well-known MS symptom caused by nerve damage that sends incorrect pain signals to the brain, even when there's no physical injury.

The burning feeling is a type of neuropathic pain called dysesthesia, where sensations don't match what's actually happening to your body. Being without treatment for a year is something worth flagging to your neurologist, especially since this symptom may be new or worsening. Some things that can temporarily make these sensations worse include:

- Heat or warm weather
- Stress
- Fatigue
- Infections

These are called pseudo-relapses and don't necessarily mean new damage, but new or worsening symptoms should always be reported to your healthcare provider. There are options that may help manage the burning sensation. A doctor might consider:

- Anti-seizure medications like gabapentin
- Certain antidepressants like duloxetine or amitriptyline
- CBD cream β€” some MyMSTeam members have found this helpful for nerve pain
- Cooling strategies to manage heat-triggered flare-ups

Given your treatment gap, reaching out to your neurologist soon would be a really important step. πŸ’™

October 18

Related Questions

View All
A MyMSTeam Member asked a question πŸ’­
Oxnard, CA

A MyMSTeam Member asked a question πŸ’­
Springs, ZA

A MyMSTeam Member asked a question πŸ’­
Philadelphia, PA