Answer Summary
Members shared a wide range of comfort levels when it comes to being public about their MS diagnosis, from those who are completely open to... Read more
I am quite open about my MS, but I am careful how I disclose it. I have MS, MS doesn't have me! So I want to see who the person might be I disclose to, for fear that my illness suddenly will color everything else.
I am an RN and have chose not to disclose at this job. I have been there 5 years. I limp so they know something is going on, but they don't ask. At my last job, I felt some discrimination, everything was blamed on MS so I left.
I am very private about mine!! It wasn't until a year after my diagnosis when I was actually comfortable with it myself did I start to open up to.others..I mainly only open up to close friends and if others are interested I am vague in regards to what information I give out..I don't want people to feel bad or look at me in a different light, probably shouldn't look at it that way, but maybe in due time that will change!
That happens not only in public but with our Nero's. Some blame everything that is happening on MS. That happened with me. My Kidneys are not working up to par. Was told it was due to MS. It was not at all due to MS I have a renal mass and several cysts. I hate it when Dr's group every little thing to MS. There needs to be a public awareness of MS. We can be very lonely and need excatly what all people need, love, acceptness, and genuine truth.
I'm very private. I don't tell people unless they are within my close circle. I don't want pity and I have been burned in the past.
How often, even AFTER diagnosis, do doctors dismiss your symptoms or undermine what you are feeling?