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MyMSTeam asked a question 💭
San Francisco, CA
April 3, 2013
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Answer Summary

Members shared a wide range of comfort levels when it comes to being public about their MS diagnosis, from those who are completely open to... Read more

Members shared a wide range of comfort levels when it comes to being public about their MS diagnosis, from those who are completely open to others who keep it private to protect themselves from judgment or workplace discrimination. Several members noted they don't advertise their diagnosis but will speak openly when asked, and many emphasized the importance of self-advocacy, sharing that being open helped others understand their symptoms and allowed employers to make helpful accommodations. A recurring theme was balancing honesty with protection, as many found that openness reduced stress and created meaningful connections, while others had been burned by pity or unfair treatment.

A MyMSTeam Member

I am quite open about my MS, but I am careful how I disclose it. I have MS, MS doesn't have me! So I want to see who the person might be I disclose to, for fear that my illness suddenly will color everything else.

April 4, 2013
A MyMSTeam Member

I am an RN and have chose not to disclose at this job. I have been there 5 years. I limp so they know something is going on, but they don't ask. At my last job, I felt some discrimination, everything was blamed on MS so I left.

April 17, 2013
A MyMSTeam Member

I am very private about mine!! It wasn't until a year after my diagnosis when I was actually comfortable with it myself did I start to open up to.others..I mainly only open up to close friends and if others are interested I am vague in regards to what information I give out..I don't want people to feel bad or look at me in a different light, probably shouldn't look at it that way, but maybe in due time that will change!

April 5, 2013
A MyMSTeam Member

That happens not only in public but with our Nero's. Some blame everything that is happening on MS. That happened with me. My Kidneys are not working up to par. Was told it was due to MS. It was not at all due to MS I have a renal mass and several cysts. I hate it when Dr's group every little thing to MS. There needs to be a public awareness of MS. We can be very lonely and need excatly what all people need, love, acceptness, and genuine truth.

February 12, 2015
A MyMSTeam Member

I'm very private. I don't tell people unless they are within my close circle. I don't want pity and I have been burned in the past.

November 29, 2013

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