I was just diagnosed with MS on April 25, 2013 (just last Thursday). I had a feeling that it as MS but just hearing the confirmation from my neurologist was shocking, but I'm processing. I will find out soon what type I have and than I will be able to go over the available treatments with my doctor. However, I am trying to write down a list of things to ask in regards to my new diagnosis and am at a loss. What are some important things I need to ask my doctor? Right now I am desperate to just… read more
I know the feeling of being overwhelmed! I had no clue, or even symptoms before diagnosed. It rocked my world! Here is what I did....I made a list. Ask what vitamins to take or supplements to take. My neuro is great, and gave me a list. I ask about the main med, what it is, and what to expect. Also, ask about the cost. Check with your insurance and check the prices. Get the number for the manufacturers.....they can offer huge discounts. Ask what home aids you might need. Handles/rails in bathroom, or stairs. Will you need handicapped parking....get an idea of what your schedules with them will be.....MRI, blood work, dr visits. Mine has an entire schedule.....dr visit every three months, blood work every three, ect. Does this help at all, or did I just make things worse.
I would like to offer more, but I think that the above answer states what I was going to say exceedingly well. It might help to keep a list of questions as they pop up. When my neurologist first suspected MS, I was flooded with questions from my own mind. I forgot to ask so many things, I wish that I had, at that time, taken the time to write down questions and thoughts as they came along.
These are questions I would ask at this time, although I am no expert by any means - Are the lesions active? Where are they - brain or spinal? Is there any treatment needed to stop the symptoms you are experiencing now?
did you have a spinal tap? I started betaseron right away, after the intravenous steroids. Best of luck!
I am sorry to hear you have MS it is hard to come to terms with i know but dont let i get you down to much. Stay positive please. It has helped me a lot to think its not the worst thing ever. The one thing i can say is work out as much as you can. Like walk and or do yoga it helps and will keep you moving. I know at times its really hard but dont let it stop you please.
the National Multiple Sclerosis Society can help. Call 1-800-FIGHT MS.