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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMSTeam Member asked a question 💭
Rockaway Twp, NJ
June 14, 2013
 · 
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A MyMSTeam Member

I stopped the tec at about 3 1/2 wks. Side effects were too much. We'll see what happens now.

August 16, 2013
A MyMSTeam Member

Been on it and little to no side effects I notice. Much better then Avonex.

HTH,
IamNot

August 14, 2013
A MyMSTeam Member

I'm into my 3rd month on Tecfidera - knock on wood, still no noticeable side effects or problems!! Go back to the Dr next month...anxious to see what they have to say.

August 10, 2013
A MyMSTeam Member

Have had relapsing remitting MS for 33 yrs, on Avonex for 13 yrs. and started on Tecfifera 11/2 months ago. Developed truncal eczema approximately 3 wks.prior to starting Tecfidera ...which was refractory to potent corticosteroids. Later developed red very inflamed lesions at eczema sites. Punch biopsy showed rare hype which may have been secondary to partial treatment. Derm seems to feel it's a fungal drug rash. Rash spreading despite treatment which was slightly over a week.
Any one with Tecfidera rash? Have had absolutely no other side effects except for minimal leukopenia.
Thanks

July 16, 2013
A MyMSTeam Member

I answered this on another thread so I am going to copy/paste my answer here too for you.

Yes, I am taking Tecfidera. It has been 5 weeks and I am not having any trouble other than flushing. Most people who get that can take an aspirin when they take their dose and it goes away. The flushing for me is quite bad, I get beat red from head to toe and it feels and looks like my skin is on fire (minus the flames, lol). It lasts anywhere from 2 min to 2 hours. I can cool down in a cold shower. That said, I was already having problems with what most would call hot flashes. For 5 years I have been in menopause which started at 39 (cycles stopped) but I also have lesions in the hypothalymus part of the brain which regulates your bodies temp. So given these other reasons I am not willing to put all the blame on the Tecfidera. I do hope this side effect gets better but I am willing to live with it either way because I do not have to work and I am mostly home-bound so I just hang out in front of the fan or in the shower. As for the MS, I do think that I have found a bit more energy and my mental fog has improved. I also LOVE that its not a shot. :)

July 10, 2013

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