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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMSTeam Member asked a question 💭
Bensalem, PA
August 16, 2013
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A MyMSTeam Member

I had CCSVI done about a year and a had ago in California. It improved my quality of life very positively.My MS went back a good ten years in symptom relief. Have had a few new symptoms, since the procedure. But I am no way near the amount of disability I presented with before CCSVI.

August 25, 2013
A MyMSTeam Member

Had significant stenosis of left femoral, left kidney, right int. jugular and azygous veins. 100% occlusion of left into. jugular. Was part of research protocol that terminated study early due to lack of evidence that procedure is effective.

August 21, 2013
A MyMSTeam Member

I was very excited about it at the time, especially because of all the you tube videos. i keep looking for new research on cures. My first cousin who is in a wheelchair also had CCSVI and she felt nothing.

August 21, 2013
A MyMSTeam Member

Had it twice with no discernable results...

August 21, 2013
A MyMSTeam Member

I did notice my headaches stopped and the coldness in my left foot stopped.No way to tell if this will continue.The reason for 3xs I had a stent put in my L Jugular and there was failure Now on Plavix to keep blood thin through stent.

August 18, 2013

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