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A MyMSTeam Member asked a question 💭
Lafayette, IN

Okay, so it's a mess. I was looking for a private insurance policy to go with my Medicare A and B so I could still get my Avonex shots when the private Anthem insurance coverage ends. I have to have real insurance (not just Medicare) in order for the Avonex people to still help me get patient assistance ($) for my Avonex. To my chagrin I have found out that because I have the dirty Medicare brand, it is in fact illegal for me to purchase private insurance. Conundrums abound. I will try getting… read more

February 20, 2014 (edited)
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A MyMSTeam Member

I suggest you contact Biogen who is the laboratory that makes these MS therapy drugs. They have programs for people who may have benefits with limits or people who just can't afford the copays and cost of the drugs. I have been on a program with the company for more than 5 years. Currently, I'm on what's called the "Copay Program". Whatever my copay is with my insurance Bioger pay it for me. The first program I was on Biogen Idec delivered to my home a 3 months of the medication at no charge to me. Call 1-800-456-2255 and just ask if there is a program that fits your needs. They do contact your insurance and may request a 1040 if applicable. Good luck!

October 29, 2015
A MyMSTeam Member

This is truly a mess! My medicare is effective April 1st and I do not qualify for the "Extra Help," as told to me by Social Security so I'm basically going to have to stop my Avonex. Medicare will pay for the injection if my MS doc gives the shot in the office, which he doesn't do...so...

The co-pays are too high for this drug. Does anyone have a good supplement insurance (ex. AARP United Heathcare) that covers decently the rest of our drugs? Thanks.

March 17, 2014
A MyMSTeam Member

I have Medicare part D, as well. I thought you had to have a part d plan if you didnt have private insure script coverage. Anyway, I am on T ecfidera. As with most MS meds, the cost will take your breath away. My Part D covers the drug (after some appeals for coverage) but leaves me with about an $800/month co-pay. The specialty pharmacy hooked me up with a foundation that covers my co-pay.

February 22, 2014
A MyMSTeam Member

My farther in law has medicare and b/c

February 21, 2014
A MyMSTeam Member

I am getting ready to start medicare in August and since I know nothing about the process yet, I can't help. But it is adding to my anxiety. However, in my poking around, Is medicare Part D for prescriptions? I hope there is a solution, because I take Avonex. I have private insurance now, but was told that it will expire when Medicare begins.

February 20, 2014

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