Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

My neurologist tells me that I have multiple lesions on my brain, has anyone els been told this. And how many is too many they just don't give you a straight answer.

April 15, 2014
 · 
Be the first to react
A MyMSTeam Member

my understanding is also that location can be the important thing not number and last I knew they really can not tell from MRI (even tho they can see the location) exactly what symptom a lesion is related to...... no matter how much they learn about it there is so much not known. The change in the # of lesions showing on your MRI can indicate the activity of your disease...but I learned at a seminar held by the Dr. Vollmer from Denver that even that can be deceptive because a new lesion can hide inside the image of an old lesion on an MRI.

April 15, 2014
A MyMSTeam Member

I had the same diagnosis of multiple lesions. My analytical nature wanted to be able to better picture and understand them. I requested a copy of my MRI so I could see the lesions and also to have it for future consultations. You have a right to them, just reuest them from the hospital that conducted your MRI.

For me it help me adjust and accept my diagnosis.

April 20, 2014
A MyMSTeam Member

I don't know the number, but this is the actual definition of multiple sclerosis - many sclera (spots). Where they are and how they affect you and if they are active or old.
Not to be rude, but did you ask him/her to explain? If you don't understand what any doctor is telling you ask them to explain. Doctors often forget that most of us don't know their medical language.

April 18, 2014
A MyMSTeam Member

I have not been told the number. The one they were very concerned about was on my brain stem. I ask when I get MRIs and they tell me no new lesions and that's it. I am due next week for one since being on Tecfidera so maybe I will get more info then.

April 15, 2014
A MyMSTeam Member

Location Location not the house but the spoTs LOL sometimes I cant remember how to get home THAT MAKES IT A BAD DAY

April 15, 2014

Related Questions

View All
A MyMSTeam Member asked a question 💭
Springs, ZA

A MyMSTeam Member asked a question 💭
Rocky Mountain House, AB

A MyMSTeam Member asked a question 💭
North east England