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A MyMSTeam Member asked a question 💭
Allentown, PA

I'm supposed to be starting Gilenya after all my pretesting for the drug is done. I would like to know your experiences with this drug. Really nervous about it. Also wondering if anyone that was taking Gilenya had any bad relapses after going off on the drug. Thank you everyone!

September 23, 2015 (edited)
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Reactions
A MyMSTeam Member

I've been on it going on 2 yrs and I haven't experienced any side affects. I would rather a pill than the daily injections. Don't know if it's working, but then you never really do.

October 5, 2015
A MyMSTeam Member

I've been on gilenya for 3 years now. I had some hair loss in the beginning, but that stopped. No other side effects. I know others that had more. Everyone is different.

September 24, 2015
A MyMSTeam Member

I have been on Gilenya for a little over two years. While I haven't noticed any improvement, there has been no side effects and I haven't had any relapses.

September 24, 2015
A MyMSTeam Member

Been on it for a little over a year so far so good. No relapses, and no problems.

September 23, 2015
A MyMSTeam Member

You betchya!!!

September 27, 2015

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A MyMSTeam Member asked a question 💭
Des Moines, IA

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