Has anyone come across John cunningham virus ( jcv) ? I'm studying the affects that taking tecfidera has on the immune system ,those that carry the jcv virus are at greater risk of then developing pml . I've been told it's very rare to develop pml and not to worry myself ?? What to do ?? I'm actually thinking of stopping tecfadera.
Can anyone help x
You really should not take Tec. against all, John. Your doc seems very nonchalant about it. You are at such a high risk of developing PML. Especially with your high result. PML has taken the life of many! Be careful!
I'm on Tec. also. After giving blood at my last appt. a few weeks later I got a call to come in to see my Neuro. When i did they said that I tested positive for JC. Also that my number or whatever its called was on the high end. So they are keeping a eye on me & luckly I see my Neuro on the 6th of Nov. they were going to take me off of the Tec. but then they decided not to.
I started on copaxone but relapsed so my neuro took me off of it. I now take tecfidera. We watch my blood counts and I really have no worries. I think there is a test for the JC virus antibodies. I believe that your immune system has to be very suppressed as if you were on chemo.
Well the only side effects that i get from Tec is the flushing which feels like a sunburn setting in & tingly all over as if something is crawling on me. That's just me, remember reactions are different in each person. Good luck hun.