I am on Tecfidera. I have felt. awful anyway. I just had a major relapse after a doctor told me to stop taking it. It must have worked better than I thought. I have read that Tecfidera should be considered a better medication for initial therapy after diagnosis to keep a clinically isolating syndrome from becoming full MS. That it shouldn't be considered a full disease modifying therapy.
What do you mean when you say you feel awful? Are you having side effects from the med or are you feeling like that before you take the med. I recommend that you take written notes to see a pattern in what you are feeling. Our health is compromised so every day is a challenge. The damage that occurs to our bodies is significant & for me takes about 18 months to totally heal from a relapse. Nothing happens quickly. That is what the med's do. They keep the relapses from happening as much. The stats on the meds are usually about 35%. It helps to stay on whatever drug you choose for an extended time to see a real difference. What you choose will be determined by drug coverage & how your body tolerates it. I have had MS for 23 years & been taking the drugs for about 11. I went off the drug once after I started but went blind so found a way to be able to afford the drug again. I have never done the oral meds. I have always done the injections. Decided to stay with what was working. I hope whatever you choose to do makes a difference in your quality of life. "Life is not about the number of breaths you take but the moments that take your breath away".
Thats not true, its fast becoming first line therapy for RRMS not just CIS. Everyone responds differently but the data is for RRMS. Do some more research, there is way more out there.
Keep in mind that any DMD, Tecfidera or otherwise is not meant to make symptoms better. So you shouldnt expect to feel better once you start taking a DMD. If symptoms arent controlled that doesnt mean the drug isnt working.
Relapse rates are different for everyone, so dont rate your response to it off of the response of others. It has to be measures against your own personal history of MS.
Just some points to remember.
I have been on Tecfidera for 2 yrs...no relapses and no new lesions..meds work different for everyone...find the 1 that works for u...good luck
That's fabulous! Sarcasm;) I've been on it for three years and it's kept me in "remission" but I feel awful I think it's just MS👎🏼
It all depends on your body. One thing that there is if Techfidera is causing issues in your brain, then you can switch to one of the many different meds that are out there.
Injectable medications
Avonex (interferon beta-1a)
Betaseron (interferon beta-1b)
Copaxone (glatiramer acetate)
Extavia (interferon beta-1b)
Glatopa (glatiramer acetate -- generic equivalent of Copaxone 20mg dose)
Plegridy (peginterferon beta-1a)
Rebif (interferon beta-1a)
Zinbryta (daclizumab)
Oral medications
Aubagio (teriflunomide)
Gilenya (fingolimod)
Tecfidera (dimethyl fumarate)
Infused medications
Lemtrada (alemtuzumab)
Novantrone (mitoxantrone)
Tysabri (natalizumab)
Use one of these with under you doctors orders and you should be fine. Another idea is to go the non-medication route or use bee sting therapy. I really don't think that these two help your system, but to each his own I guess.