Hello! I was diagnosed in August and my neuro put me on the 3 x weekly Copaxone injections and I've been doing fine on that for about 4 months. She wasn't able to see me as a patient anymore since she decided to focus her career on research so I had to find a new neuro and he suggested that I start on Tecfidera instead. I'm very new to MS and was hoping to get some advice from people who have experience with one or both of these medications and could help me decide. Any advice is… read more
Hi. I did Copaxone for a few months and hated it. I had bad reactions to it too. I saw a neurologist who specializes in MS (I wanted the doc who really knows this stuff; someone who writes medical articles about MS for fun; someone who other doctors will go to if they had MS.) After some research, I found him (I live in Chicago where we have access to some very good neuros) and he said Copaxone will do nothing for me and put me on monthly infusions of Tysabri. Since then, all good here, nothing new to report, and I dutifully show up once a month for my infusion. I say push back on your neuro for something different than Copaxone. It's been around for a long time, and I know others have done it without any issues, but I also know how bad the reactions can be. You need to be your own advocate and press for a different drug.
I was diagnosed in 2004 and have been on @Copaxone ever since with NO exacerbations. It obviously works for me! I was on 7X a week until they came out with the 3X a week.
I believe Copaxone is ok safe when I was on Copaxone 20mg,x 7days a week, or ( 20mg x 7days=140mg but when they switched to Copaxone 40 mg x 3 = 120 mg 3 days a week I had at least 2 relapses, and my Nero switched me to AUBAGIO 14mg.
I had lost some functionality do to the relapses.
why? i understand getting off copaxone, but why tecfidera, what was his case for this drug that causes so many people major, and i mean major problems with a depletion of lymphocytes? there has been much discussion regarding the % of patients that are actually impacted by this drug.