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April 22, 2017
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A MyMSTeam Member

@A MyMSTeam Member - I am diagnosed as PPMS and will not even consider taking Ocrevus. Here is the best, and most recent article that I have seen that verifies what I have read about this drug over the past 2 years........

The truth about Ocrevus.........

http://www.healthnewsreview.org/2017/04/fake-br... ocrevus

April 28, 2017
A MyMSTeam Member

@A MyMSTeam Member it is disappointing that ocrevus has not measured up to all its hype. It is hard to trust the pharmaceutical industry. That is why I am always in here on my husbands behalf hoping to hear from people with secondary or primary progressive MS. is there anyone on here that uses rituxsn that has progressive ms? Has it ever been perscribed in Canada.

April 29, 2017
A MyMSTeam Member

@ undiscloseEd that link was perfect! It's so disheartening to know this because we live with MS, yet to "outsiders" they now think it's so close to some cure and think it's some major breakthrough rather than just another treatment to hopefully lessen the progression of some types of MS. If it does help some, who this may be the next best option because of the games played by the industry, then I truly hope the best for them, but to present it in the manner they are to the general population, it's so frustrating. I had quite a few texts from family/friends the day this "breakthrough" came out and had to explain why it wasn't as wonderful as the nightly news was reporting. Breaks your heart all over again.

April 29, 2017
A MyMSTeam Member

Do your research if you have PPMS, there are money games being played here with PPMS.
If you have RRMS it could be great.

April 24, 2017
A MyMSTeam Member

My understanding is that is the sibling of Rituxan, just a "more humanized" version. Perhaps read up on and ask your doctor about Rituxan. My doctor wasn't going to switch me to this "new wonder drug" (Ocrevus) because it's so similar, other than they can now make these claims and charge a ton ton more. I just started Rituxan (day 1, day 14 and then in 6 months) and I'm remaining on Copaxone 3x per week. Good luck :)

April 23, 2017

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