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A MyMSTeam Member asked a question 💭
Manchester, NH

I’m recently diagnosed and am looking through treatment pamphlets before i go talk to my neurologist on Friday to make a decision.... injections really make me nervous, and I already have a huge phobia of needles.. so I’m thinking about tecfidera but it makes me nervous that it’s so “new”. Is anyone on it that can tell me how they like/dislike it?

March 13, 2018
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A MyMSTeam Member

They need to test your blood regularly. I ended up having an unlisted side effect - which was a decrease in mobility. I recommend keeping a journal of how you feel before and after taking the medication so you will be able to track subtle changes that might not be on the list of side effects. Good luck! I hear you on the needles. Yuck.

March 15, 2018
A MyMSTeam Member

I’m on that stuff for about a year and a half now. Keep sn eye on your WBC. Especially your CD3, CD4 and CD8

March 15, 2018
A MyMSTeam Member

I’ve been on Tecfidera since Oct (2017) and the flushing/burning goes away after a couple months. I’m more concerned with the hair loss. In the last 4 months I have lost 2/3 of my hair. Every time I brush it I get huge handfuls out of the brush. My husband has to clean the tub drain every week. 😢 My Dr is wanting me to switch medications again. I was on copaxone for 10 yrs before but it wasn’t working for me any more. I don’t do well with interferons and I’m too afraid of some of the other medicines side effects. Does anyone know about aubagio?

March 15, 2018
A MyMSTeam Member

I was on Tecfidera for 3 years and had to get off of it due to becoming positive for the JC Virus which Long Term on Tecfidera can possibly set it off. Being on Aubagio has done wonders for me. I am allergic to the shots.

March 15, 2018
A MyMSTeam Member

I started Tecfidera in January, some burning hot flashes in the beginning, but less often now. I was very pleasantly surprised, I was nervous because I always have side effects to drugs. Certainly hope it’s working because I want to stay on it and also do not like injections.

March 14, 2018

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