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A MyMSTeam Member asked a question 💭
Buena Park, CA

My red blood cell count is slightly low & my Neuro is adamant about switching my meds from Rebif to Copaxone. Any advice would be wonderful 🙂.

July 7, 2018
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Reactions
A MyMSTeam Member

Sorry I thought I had posted this already. Some information I have posted, but seeing it again doesn’t hurt.
Repost - FYI:
Sorry in advance for the long read:
For cognitive and fatigue issues the medication Ampyra might help. It’s worth a try. See video as it mentions that it can help with walking problems or any where there is demyelination. For vision issues steroid infusion has helped others in this forum.
https://m.youtube.com/watch?v=UT8xlpRnsmU

This is a webinar that mentions MS medications and how they compare to each other. This information is scattered all over the internet and great to have it in one webinar. A must see.
“Published on Apr 23, 2018
Join RMMSC Medical Director Dr. Timothy Vollmer for an in-depth look at disease modifying therapies (DMTs) – the front line in our fight against MS. This webinar will give you a better understanding of the treatment options for MS, including insight into how specific DMTs work, their comparative safety, and their comparative effectiveness.”
https://m.youtube.com/watch?v=lDvb6tVCxOI
Some data presented👇:
@ Avonex decreases relapses by 30% and has no effect on brain atrophy.

@ Copaxone
Decreases relapse rates by 30%
Decreases brain atrophy by 20%

@ Aubagio Tablet
Decreases relapse rates by 30%
Decreases brain atrophy by 20%

@Gelenya
Decreases relapse rates by 60%
Decreases mri activity by 60 to 70%
Decreases brain atrophy by 34%
Chance to improve symptoms is moderately high.

@ Tysabri:
Decreases relapse rates by 67%
Decreases mri activity by 80%
Decreases brain atrophy by 45%
Don’t use this medication if you are JCV positive.

@ Tecfidera. Tablets
Decreases relapse rates by 50%
Decreases mri activity by 50%
Decreases brain atrophy by 30%

@ Ocrevus
decreases relapse rates by 80%
decreases mri activity by 95%
decreases brain atrophy by 45%
Chance of improving symptoms is very high in RRMS.

Decreasing relapse rates should be a must when fighting MS because my first relapse was unexpectedly horrific. Wish I had ocrevus and it’s 80% decrease in relapse rate before eventual job loss, but that’s the breaks.
Other MS information 👇
https://m.youtube.com/watch?v=sG1DPWKW99E
https://m.youtube.com/watch?v=0_iPucV2SxM
https://m.youtube.com/watch?v=J4prsO-FDzs
https://m.youtube.com/watch?v=7ObnkCuU7xo&l...
http://mscured.com/stem-cell-transplant/what-is...
Scroll down then Press home to watch this video.

https://m.youtube.com/watch?v=T1ipXA4I0_M
This video was 2016 and need to follow up to see where this doctor is with his stem cell work and his nerve damage repair progress.
https://m.youtube.com/watch?v=FOriRoKx-34
https://m.youtube.com/watch?v=TvnYmWpD_T8
...

July 30, 2018
A MyMSTeam Member

I'm an old timer I guess...19 years on Copaxone! No problems and Shared Solutions has been great! My WallyWorld insurance is making me change to generic Copaxone. My neurologist is gonna make it so I don't have to change. He says generic injectables aren't tested as well as other generics. We'll see what happens I guess😉 Good Luck @A MyMSTeam Member If you have any other questions, please ask😊

July 10, 2018
A MyMSTeam Member

I have been on Copaxone for the past 10 yrs, no issues here.

July 8, 2018
A MyMSTeam Member

Only MS drug I've ever taken, bout 9 years, no negative side effects and I'm a member of Shared Solutions, they're great

July 7, 2018
A MyMSTeam Member

Copaxane wasn't strong enough for me. So I had to be switched to Tysabri. Hopefully, the Copaxane is strong enough for you.

July 7, 2018

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A MyMSTeam Member asked a question 💭
Ontario Canada

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