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I have progressive MS an I need to chose a new treatment. My lesions show up in my MRI there just not active. After years on tysabri, it's time for me to move one to new meds. Which ones do you recommend? My Dr has recommends me a few but I would like to hear about people living with MS
Please comment your experience with your meds.
Thank you,
rz
I have PPMS and will have my third Ocrevus infusion next week. I am being positive!
I was in Tysabri for 7 or 8 years my Dr was very conservative and chose to change me to Tecfidera what a mistake that was bad relapse hospital and rehab for 31 days you rebound very very very very hard after being on such a great medication but I am on Ocrevus and its the best no new lesions or relapse my last tysabri dose July 2017 started Ocrevus in October 2107 wash out period is not too long they will check for Hep and TB. No bad reaction only at the infusion day and they administer Benadryl in your IV wait 30 min and continue. I am so happy I changed meds!!
I hope this helps
“Published on Apr 23, 2018
Join RMMSC Medical Director Dr. Timothy Vollmer for an in-depth look at disease modifying therapies (DMTs) – the front line in our fight against MS. This webinar will give you a better understanding of the treatment options for MS, including insight into how specific DMTs work, their comparative safety, and their comparative effectiveness.”
https://m.youtube.com/watch?v=lDvb6tVCxOI
Some data presented👇 by percentage:
@ Avonex decreases relapses by 30% and has no effect on brain atrophy.
@ Copaxone
Decreases relapse rates by 30%
Decreases brain atrophy by 20%
@ Aubagio Tablet
Decreases relapse rates by 30%
Decreases brain atrophy by 20%
@Gelenya
Decreases relapse rates by 60%
Decreases mri activity by 60 to 70%
Decreases brain atrophy by 34%
Chance to improve symptoms is moderately high.
@ Tysabri:
Decreases relapse rates by 67%
Decreases mri activity by 80%
Decreases brain atrophy by 45%
Don’t use this medication if you are JCV positive.
@ Tecfidera. Tablets
Decreases relapse rates by 50%
Decreases mri activity by 50%
Decreases brain atrophy by 30%
@ Ocrevus
decreases relapse rates by 80%
decreases mri activity by 95%
decreases brain atrophy by 45%
Chance of improving symptoms is very high in RRMS.
Decreasing relapse rates should be a must when fighting MS because my first relapse was unexpectedly horrific.
Wish I had @ @ ocrevus and it’s 80% decrease in relapse rate before eventual job loss, but that’s the breaks.
Honestly from what I understand Ocrevus is the one and only treatment for primary progressive, I started treatment yesterday.
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