I’m currently taking Aubagio. I have to switch medication because this one not working for me anymore. My neurologist and I are thinking Tysabri. What is everyone’s opinion of Tysabri? Or any other medication?
@A MyMSTeam Member no doctor tells us the real truth about how to treat MS. Sadly, it's trial and error. It's rare that you meet an MSer, if they are taking the DMT route, that's on the same med they were on when they started on their DMD journey. Let me tell you the one thing I learned about treating MS, there is no way to tell which med you should be on and there is nothing wrong with changing meds. So aubagio didn't work for YOU. Well time to switch drugs. I have heard nothing but positives about Tysbria but know I will never try that one, I'm JVC positive. I'm on an infusion, Rituximab, but wouldn't tell you that it will work for you even though it works for me. Unfortunately, you need to change drugs until you find one that works for you and you have 16 that you haven't tried. This part of disease management isn't often explained but we are science experiments until we find the drug that works for us. I'm for you trying Tysbria because it means you're once step closer to your answer and I really hope it's Tysbria!
LOL nothing makes me feel secure like 'medical trial' or 'we have no idea what causes MS' ..... the funny thing is I have never had a bad reaction to Tysabri but they make me stay an extra hour after I finish my 'infusion' for observation. Helpful hint, pack a snack like a bag of chips since the infusion takes 2 hours, your wait can be 30-50 minutes and it can take 30 minutes to find a vein sometime. Plus the pharmecy has to mix it up. The whole thing can take 4-5 hours.⭐️ Also drink tons of water the day before to help them find a vein.
Go for it every thing that if heard has been positive definitely give it a try definitely Tysabri is the shit from what I heard
I have been on Tysabri for 4+ years and since starting it I have had no new or active lesions!! I feel,its the best!!