Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMSTeam Member asked a question 💭
Greensboro, NC

Ok, MS &/or Caregivers Warriors. How you or your loved on ever experienced feeling like your body is 😴 sleep but you are wide awake😲.

This has got to be one of the weirdest & crazy feelings that I have dealt with. Sooo fatigue, worn out, body just limp, drained etc. Spoke with Nerologist about it & he stated that this happens with people who don't have MS. Well I have never experienced this til about 1 year ago. I'm just saying. Lord Help!!!

March 5, 2019
 · 
Reactions

Answer Summary

Members connected over the strange and exhausting feeling of the body feeling asleep while being wide awake, with many recognizing it as sleep... Read more

Members connected over the strange and exhausting feeling of the body feeling asleep while being wide awake, with many recognizing it as sleep paralysis, extreme fatigue, or MS-related numbness. Several members shared personal strategies for managing these symptoms, including keeping a daily symptom log, adjusting diet by cutting sugar and dairy, taking vitamin B, and listening to the body by resting when needed. A recurring theme was the importance of advocating for yourself with your doctor and finding comfort in knowing that others in the MS community truly understand what you are going through.

A MyMSTeam Member

Good question!! I asked the exact same thing back in 2014; I was told that I was having bad spasms with both legs. I forgot the name of the meds that were prescribed for me at the time and just started to take regular Centrum Silver over the counter, helps with strength. Only 1 pill a day along with my regular vitamin B 100mg also over the counter.

March 5, 2019
A MyMSTeam Member

MSF 4 Numbness or Tingling I hope this helps.
Numbness of the face, body or extremities (arms and legs) is one of the most common symptoms of MS. Often it’s the first symptom experienced by those eventually diagnosed with MS. The numbness may be mild or so severe that it interferes with the ability to use the affected body part. For example, a person with very numb feet may have difficulty walking. Numb hands may prevent writing, dressing, or holding objects safely.
People with MS who have severe facial numbness should be very careful when eating or chewing, as they may unwittingly bite the inside of their mouth or tongue. People with numbness over other parts of the body should be careful around fires, hot water and other sources of heat, as they may suffer a burn without realizing it.

There are no medications to relieve numbness. Fortunately, however, most instances of numbness are not disabling, and tend to remit on their own. In very severe cases, a neurologist may prescribe a brief course of corticosteroids, which often can temporarily restore sensation.

March 6, 2019
A MyMSTeam Member

Listen to your body. Sometimes I could have good nights sleep and still wake up tired. My brain wants to get up but my body not ready. I call it my MS day and rest as much as I can.

March 14, 2019
A MyMSTeam Member

I get times when my whole body feels numb, even my brain, lol. It doesn't always happen just when I'm tired so it has to be part of the MS fun. Definitely feels weird.

March 6, 2019
A MyMSTeam Member

I think my fatigue got better after I changed my eating habits. I'm basically off sugar, grains, and dairy. It haven't been as hard as I thought it would be and the rewards are worth it.

March 6, 2019

Related Questions

View All
A MyMSTeam Member asked a question 💭
Glens Falls, NY

A MyMSTeam Member asked a question 💭
Dudley, UK