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September 3, 2019
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A MyMSTeam Member

Hi I also changed my diet, no red meat nearly no diary and that's why I'm thinking of not going back on meds as I say I feel great...

September 5, 2019
A MyMSTeam Member

I was diagnosed six and a half years ago and started taking tecfidera within 6 monthes. I took it for almost a year and experienced several strong negative side effects (severe abdominal pain/cramping, severe flushing, feeling very awful). I did a lot of research. I changed my diet. I have been medication-free for five years and feel great. I do still have an occasional symptom, but I feel so much better than before. I realize that there may come a time when I have to change my plan, but for now, I will keep focusing on the foods that I eat and how I take care of myself.

September 5, 2019
A MyMSTeam Member

I got really frustrated with the MS meds which had been prescribed to me. I didn't have the right DMD for my MS and the meds I took made me feel overly tired and had few upsides so I quit all DMTs for like 6 mnths to a year. I felt great at first but started to slip after the start. Now I think stopping all DMDs was a huge mistake and I would've been far better telling my neuro I felt the DMDs I had been on weren't the right ones for me and kept trying them until I found the right one for me. I gave the DMD route one last try and found one that worked for me, Rituximab. I know this one may not be right for you (I mean it's a treatment for MS and all so it's a professionals SWAG or scientific wild a$$ guess that worked for me) Look, I know the light at the end of the tunnel has been a train and it's hard to muster the will but please keep looking for your DMD.

September 4, 2019
A MyMSTeam Member

I don't think you can really come off a medication and assess how you are feeling as a comparison of the protection it is giving your body. You might feel better temporarily off of a med but DMT's affect your body long term so you won't notice the effect of being off of it until several years down the road when you have disease progression.

September 4, 2019
A MyMSTeam Member

I stopped all meds in 2008 when I had to go on disability and after bad side effects. In 2014, I went into a beautiful remission (after worsening). I am still in that remission. As of the end of August 2023, I celebrated the 9th anniversary of my beautiful remission, with most of my symptoms now gone or manageable with lifestyle changes.

December 31, 2023

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