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A MyMSTeam Member asked a question πŸ’­
Ontario Canada

Is anyone else cold most of the day regardless of how much clothes they wear? Its like I cant self regulate my body temperature. I get over heated at night when the air temperature drops too.

March 5, 2020
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A MyMSTeam Member

Many of us have issues with cold/hot. It has nothing to do with menopause (sorry DeborahPeakeYoung) but has a lot to do with where your lesions are located in your brain. The brain consists of a central temperature regulator right in the middle of your brain. It is one of the most important sections of your brain - the thalmus and hypothalmus. These are the regulators of the brain somewhat like the thermostat is in your home. For those of us who have lesions in that area - we can be subjected to what is called Meunerse (?) disease which causes our hands, fingers, etc always seem cold or lacks feeling. I am adding an image of the brain for all of you who have not seen one where it basically tells what parts of the brain does what. I have problems with heat in the summer where I will get violently ill, deydrated, headaches so I need to live in a place that has air conditioning and stay indoors during hot days. In winter, my furnace gets turned on only during the 3 months of December, January and February. When it is on I keep the rooms at 65 degrees until the air conditioner sets in. Lesions in the spinal cord area can prevent the electrical information from going to the right areas. In MS look at it somewhat like an electrical wire you have connecting your lights. MS blocks the information from going directly down the cord, somewhat as if the cord has a short in it or has been cut - so bang it keeps hitting a dead end every time it tries to move further. The good thing is they can heal themselves letting the information to move or even bypass the "wall".

Not all of us have problems with heat/cold but about 60% of us do. I hope that this explanation is understandable. If not, please do not hesitate to ask me for more explanation.

March 5, 2020
A MyMSTeam Member

I'm usually cold during the day and hot at night. Today I'm sweating like crazy. Laying down at this moment.

May 1, 2020
A MyMSTeam Member

I am constantly overheating, it makes it difficult to do anything. I noticed that I run a low body temperature all the time but when I get overheated I'm running a low grade fever. Once I get cooled down, it goes away. I'm sure the loss of myelin is causing it, everyone is different since the symptoms depend on where it's lost.

April 23, 2020
A MyMSTeam Member

I’m always cold during the day and use a heating blanket . However for some reason as soon as I hit my bed I get overheated and use a fan.

April 27, 2020
A MyMSTeam Member

don't have a problem being cold "it's the heat that
show me (MS) is still in charge"

I just keep praying πŸ™πŸ½πŸ™πŸ½πŸ™πŸ½πŸ™πŸ½ it's one day at a time

April 22, 2020

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