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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Is anybody able to share their experience of Aubagio, Telfidera or Mayzent?

A MyMSTeam Member asked a question 💭
Weymouth, UK

Just wondered if anyone has opinions about side effects? Not many and it's easy to deal with, or lots of side effects and difficult to put up with.

January 20, 2022
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Answer Summary

Members shared a wide range of personal experiences with MS medications including Aubagio, Tecfidera, Mayzent, and others in response to a... Read more

Members shared a wide range of personal experiences with MS medications including Aubagio, Tecfidera, Mayzent, and others in response to a question about side effects. Several members reported doing well on Tecfidera for many years with minimal side effects like flushing or hot flashes, while Aubagio experiences were more mixed, with some noting hair loss or fatigue and others praising it for stopping new lesions. A recurring theme was that each person's response to these medications is unique, and finding the right fit often takes time, patience, and close work with a neurologist.

A MyMSTeam Member

@A MyMSTeam Member Aubagio was the fourth and last MS medication I took before voluntarily getting off of it back in 2019; haven’t had any MS-related problems since. My last relapse was in 2012 while still on Tysabri, so we got me off that and tried Gilenya until my body didn’t like that one and then Aubagio. I had ZERO relapses while taking it.

My neurologist was on board with me to stop taking Aubagio, but important lesson I learned is don’t try to just let the medication work its way out of your system on its own, it causes problems. Make sure to take all the charcoal doses and don’t miss any to clear your system out completely. Aubagio gave me my life back! I continued to improve while taking it, to the point I could spend time working in my yard pulling ivy and berry vines.

January 25, 2022
A MyMSTeam Member

I’m not having any drugs

January 30, 2022
A MyMSTeam Member

Aubagio was an Excellent choice for m. I was on it x 9 yrs with out any probs!!
I am now on Ocrevus x 3 yrs withno probs either!!
I am due for my next Ocrevus infusion in January 2023!

November 30, 2022
A MyMSTeam Member

I was Vumerity was taken off had major relapse then was put on Mayzent that didn’t last long I got swelling behind both my eyes only 2% of people who were on it has that reaction. Now I am waiting to start Aubagio. Hope it works.😀

November 12, 2022
A MyMSTeam Member

I had been on Tecfidera for 6 years. I recall flushing as a side effect I had.

January 28, 2022

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