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A MyMSTeam Member asked a question ๐Ÿ’ญ
Ypsilanti, MI

What are you taking? What is it costing you? (Side effects) Does Botox injections help? I'm on bacolfen 80mg per day {30am-20noon-30pm} My spasticity is so bad that I'm not walking properly. I'm dependent on the wheelchair for long distant walks (anything over 100 steps)

May 9, 2024
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A MyMSTeam Member

Valium helps with spasticity?! Wow! I'm gonna ask doc if I can try that. The baclofen doesn't seem to be working. I thought Valium was for nervousness mood type stuff

May 10, 2024
A MyMSTeam Member

@A MyMSTeam Member ....I have an AFO brace, but it only gets in my way. The leg is so rigid...the brace doesn't seem to help. Not to mention how hassling it is to put on & take off. I don't like driving with it on ๐Ÿ™†๐Ÿพโ€โ™€๏ธ๐Ÿคฆ๐Ÿพโ€โ™€๏ธ

May 12, 2024
A MyMSTeam Member

I take lorazepam it works ., for the spasms and cramps yes the panic med . So far I pay for my migraine botox . Insurance wants me to take all the pills that make me so sick . My insurance does cover it .

May 12, 2024
A MyMSTeam Member

I get botox injections in both lower legs and feet for spasticity every 90 days and they have me on Valium (diazapam) throughout the day 3x a day to help and shockingly enough the Valium is one of the FEW meds that I take that really show me a difference. Sometimes I wonder if all these meds I take do what they say but that one really did... even more noticeable to me than the botox.

May 10, 2024
A MyMSTeam Member

My healthcare professionals aren't listening to or attending to my problem. I am unheard & ignored.

May 10, 2024

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A MyMSTeam Member asked a question ๐Ÿ’ญ
Alexandria, VA