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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
June 9, 2024
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Answer Summary

Members responding to the question about managing bladder issues beyond Detrol shared a wide range of treatments that have worked for them,... Read more

Members responding to the question about managing bladder issues beyond Detrol shared a wide range of treatments that have worked for them, from prescription medications like mirabegron, solifenacin, Myrbetriq, and Toviaz to more advanced options. Several members described life-changing results from procedures like bladder Botox injections every six months, a sacral nerve implant, and self-catheterization, each helping reduce nighttime wake-ups and accidents significantly. A recurring theme was the importance of seeing a urologist or specialist, as personalized treatment plans made a real difference in quality of life.

A MyMSTeam Member

My MS urologist recommended IntraStem. It is an implant that controls my bladder. It has external controls, so I can reset it if I am tending toward losing my abiltiy to hold the urge to urinate. Those controls also allow me to turn it off if I need an MRI. They have something for men that 100%controls the spincter. I have had this device for over 2 years and I have been pleased with it.

June 15, 2024
A MyMSTeam Member

CBD gummies changed everything- maybe up once per night and pain anywhere is non-existent. Do some research at local cbd store.

June 15, 2024
A MyMSTeam Member

I used to take Mybetric, but still did not control my overactive bladder. I went to a new DR that specializes in women’s bladder problems. She recommended Botox for my bladder, I get injections about every 6 months. It worked amazingly! I don’t get up at night at all. No leaks during the day, unless I am getting close to the 6 month mark. Even then, a small pad takes care of it. The procedure is almost painless, just like a few little pinches, no big deal. It did not fully kick in until after the second procedure. I feel free again, no constant worry when I am out if I can get to the bathroom in time. I am free again. I am on Medicare with an advantage plan, it is covered almost completely. My out of pocket is less than I was spending on pads & diapers.

June 16, 2024
A MyMSTeam Member

I take Myrbetriq 75mg and Toviaz 8mg and with the two I don’t have to worry about the “sudden urge to go” and usually only have to get up once during the night.

June 15, 2024
A MyMSTeam Member

Get a supra pubic catheter, easy :to use and you’ll need one eventually ,I’m so glad to have one, recommend to everyone . Vicky

June 15, 2024

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